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bethandmanly
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PostSubject: Genetic testing   Fri Mar 06, 2009 1:51 pm

Hello all,

I think most of you know this, but I lost my mother to cancer when I was a teenager. She was first diagnosed at the age of 45 and died two years later after the cancer returned and traveled through different parts of her body. I have decided to begin looking into genetic testing.

I only know a little bit about it, but basically they look for alterations in the BRCA1 and BRCA2 gene which might indicate a greater risk of a woman developing breast cancer or ovarian cancer. The overall lifetime risk of being diagnosed with breast or ovarian cancer increases dramatically in women with altered genes, and since my doctors have always told me that if I developed cancer it would be likely to happen around the same time my mother had it, I feel the need to do this. My first appointment is on the 19th.

Yes, I am nervous about what the tests will show, but my need to know how high is my risk is much greater than my fear of the results. If it shows I have altered genes, I could begin discussing options to help prevent cancer, such as surgeries to remove certain organs. And since I think the hubby and I have decided we will try to have another baby, I think it's better to know now then wait until later.

Your prayers over the next few weeks will be most appreciated.

Thanks.

Cheryl


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Rhonda
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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 3:51 pm

Praying all works out for you Cheryl. All these years, my sisters and I have always watched for signs of breast cancer because my granny died after going through breast cancer and thyroid cancer.......Who'd have thought I get something that they don't even have a name for.......Hang in there and you know how to get in touch with me if you need to. Thumbsup



CANCER FREE!!! áApril 9, 1998-April 9, 2016-I AM A SURVIVOR!!!
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Savannah
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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 3:55 pm

I'll be praying, too, Cheryl.
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bethandmanly
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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 5:42 pm

Thanks ladies. You're the best.


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pamh36
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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 9:33 pm

You are in my prayers, Cheryl.


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MattLabMyLove
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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 9:40 pm

I ask God that all goes well with you.


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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 10:16 pm

I'll Be Praying for you Cherly that all goes well


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Rob
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PostSubject: Re: Genetic testing   Fri Mar 06, 2009 10:17 pm

Count my prayers among the others, Cheryl.
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bethandmanly
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PostSubject: Re: Genetic testing   Sat Mar 07, 2009 12:33 am

Thanks everyone. Your prayers mean a lot.


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Alice
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PostSubject: Re: Genetic testing   Tue Mar 10, 2009 8:47 pm

I'll be praying that the test has good results for you, Cheryl.





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bethandmanly
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PostSubject: Re: Genetic testing   Wed Mar 11, 2009 12:05 am

Thanks Alice!


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LM
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PostSubject: Re: Genetic testing   Wed Mar 11, 2009 4:30 pm

I've just said one for you.





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PostSubject: Re: Genetic testing   Wed Mar 11, 2009 7:23 pm

My thoughts and prayers are with you, Cheryl. How exciting you are planning another baby. Wave
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bethandmanly
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PostSubject: Re: Genetic testing   Thu Mar 12, 2009 12:08 am

Thanks LM and Susie. Planning is the key word there, Susie. Only God knows if it will happen. But they say that practice makes perfect. happy1


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bethandmanly
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PostSubject: Re: Genetic testing   Wed Mar 18, 2009 10:11 pm

By tomorrow morning I might have bitten all my nails off. I'm nervous over going to see the doctor and getting the whole process started, though I know I'll feel better than if I don't have it done.


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PostSubject: Re: Genetic testing   Wed Mar 18, 2009 10:33 pm

I Will Pray for you Cherly


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Savannah
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PostSubject: Re: Genetic testing   Wed Mar 18, 2009 11:10 pm

I'm praying for you, Cheryl. grouphug
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pamh36
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PostSubject: Re: Genetic testing   Thu Mar 19, 2009 6:54 am

You are in my thoughts and prayers today, Cheryl, and as you go through this process. (((HUGS)))


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Amy
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PostSubject: Re: Genetic testing   Thu Mar 19, 2009 9:40 am

I'm sorry I'm just now seeing this. You'll be in my prayers as well Cheryl. This reminds me of what we're going through with my mom...my grandma had Alzheimers and we're trying to get her to go in to be tested---my mom is starting to be more and more forgetful, but is scared of 'knowing' anything. I know it's not quite the same thing, but similar. And actually, I didn't realize this about your mom...I am so sorry you lost her at such a young age. That had to be so incredibly difficult.

Here is some breast cancer information a lot of people don't know about....doctor's don't talk about it because it's a 'natural' thing. Whistle The use of an Iodine supplement in the system has many health benefits, mainly healthy breast tissue. My friend has done a great amount of research on the subject and has taken it herself. She suffered severely from monthly cramps and it has relieved that tremendously. Here is a link on the use of Iodine as a breast cancer preventative:

http://www.breastcancerchoices.org/


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bethandmanly
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PostSubject: Re: Genetic testing   Thu Mar 19, 2009 5:14 pm

Thanks for the prayers everyone and thanks for that link Amy. I'll have to take a look at it.

The doctor is recommending me for the test because they don't know if my mother had the altered gene and I don't know a lot of my family history. I had called my dad, who I haven't spoken to in 10 years, but he never called me back.

If the test comes back negative, then the doctor suggests I keep going for annual mammograms and then going for an MRI every two years. The good thing is that if I don't have the gene, then my girls won't have it either, and they will never need to worry about it.

If the test comes back positive, then I have a lot of decisions to make. One good thing is that only 7% of the population has this altered gene, so those odds are in my favor.

I am now waiting for my insurance to approve the blood test, then after the blood is drawn I'll need to wait two weeks for the results. I'll feel better once the results are in and I know which way I am heading.


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PostSubject: Re: Genetic testing   Thu Mar 19, 2009 5:23 pm

bethandmanly wrote:
Thanks LM and Susie. Planning is the key word there, Susie. Only God knows if it will happen. But they say that practice makes perfect. happy1

For sure Whistle

I thought about you today, Cheryl. Thumbsup I'm praying that all the test will be fine.
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PostSubject: Re: Genetic testing   Fri Mar 20, 2009 10:29 am

I'll be praying for you too.


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PostSubject: Re: Genetic testing   Mon Mar 30, 2009 9:20 am

Waiting on insurance to respond is like watching a snail. When Lauren was trying to get cleared for her surgery it took over two months. Her Mom called them everyday for a while, and I think they jumped on it finally so as not to talk to that "lady on the phone" again.
Stay on them....




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LM
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PostSubject: Re: Genetic testing   Tue Mar 31, 2009 8:29 pm

bethandmanly wrote:
Thanks LM and Susie. Planning is the key word there, Susie. Only God knows if it will happen. But they say that practice makes perfect. happy1

You're very welcome!





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bethandmanly
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PostSubject: Re: Genetic testing   Fri Apr 10, 2009 10:19 pm

I am so ticked off right now. My insurance company denied to pay for my genetic testing on the grounds that my plan will only pay for it if I get breast cancer by the age of 45 or younger.

Now, if I get breast cancer, why in the flying fig would I need a test to tell me that I am at an increased risk for getting breast cancer? The whole point of the darn test is to give me the option to have surgery or other treatments that will help reduce my risk of getting breast or ovarian cancer.

I almost threw something across the room when I read the letter. I am going to appeal and I am not going to be nice about it. I hate Health New England!!!!!!!


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PostSubject: Re: Genetic testing   Today at 5:43 am

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